A Hard Day

One of the hardest of recent memory. I moved my dad again today, not because I wanted to or even had a choice. His facility in Payson sent an eviction notice a couple weeks ago, apparently they and Medicaid can’t get their $hit together to facilitate payment smoothly. The house manager, Chris had called me repeatedly asking what I could do about it and my answer has consistently been a big ole nothing. I mean I’m doing our part, paying into Medicaid via my dad’s spend down and paying the facility agreed upon lower rent that Medicaid is then supposed to cover the difference. My dad was evicted because he is poor. Plain and simple.

We have a Medicaid case manager that I’ve been in touch with through all of this. She asked me a couple weeks ago coinciding with the eviction notice if I would be willing to move my dad out of Orchard View and into a facility that was easier to work with. I said yes and let her steer. She found the new place, booked a mover, discussed the new agreements and kept me well informed. She also told me that Chris had been verbally abusive to her so she was no longer communicating with him or Orchard View (OV). So I had some trepidation about retrieving my dad from there this morning.

When we got to OV this morning (we being the kids and I thanks to a random Monday off school) there was a palatable feeling of sadness amongst my dad’s care staff. Chris had excuses for his behavior, but I don’t buy it and maybe he’ll sue us but there’s literally nothing I can do to make up for what my dad couldn’t afford to pay while we waited and waited on Medicaid, don’t ever get old with no financial security it’s truly a nightmare and had my dad not had an advocate he’d likely be living on the streets.

Back to the main event though…There was lots of holding hands and comfort and some tears. He really does make an impact once people spend a good measure of time with him. He was also in a great mood, at one point of complete lucidity he said, “Let’s go back to Colorado”. This broke my heart wide open. This man rarely acknowledges that we’re even in a different state when we get him for outings despite all the Utah license plates, the landscape confusion and an interstate he’s unfamiliar with. I think maybe he was anticipating a drive today and maybe the long road trip we took when we first moved him to Utah just over a year ago. This is all conjecture, as his next sentence was, “I loved that song.” So who really knows.

So we get to his new facility with some of his things, still waiting to hear from the movers for his furniture. They’re surprised we’re there and aside from the vacant room are not aware that today was move in day…great. They let us unload and say to wait for Mikayla to come back from lunch. We unload while my dad sits and waits in unfamiliar surroundings, and waiting is just about the worst for him as it begins to get him agitated. I decide to run to the store with him for a few needed items and to break up the waiting. As the kids and I are grabbing our late lunch I get a call from the new facility’s owner asking all the questions and wondering when we planned on moving in. I said we were halfway moved in already and today would be great, in fact you’re our only option at this point. So we hurry back to the new place, meet Mikayla, sign a load of new paperwork, hand over a large check, all with my dad waiting once again, getting up to pace around a few times and having his mood sour further. When it came time for us to leave the movers still hadn’t been in touch, we were running late for a parent teacher conference back home, and dad was coming unraveled. He asked why we had to leave, could he come with me, why did he have to stay there, nobody was going to care for him. All of it and all of the guilt. I made our exit quick instead of lingering since any answer I was giving at this point was only making him more agitated.

The first thing I did when I got back in my car was call the movers, they were indeed still planning on today, their morning job was much longer than originally anticipated. Fortunately their dispatch called me several more times through the evening to let me know their progress. I think things finally got delivered by about 8pm. Good thing dad rarely goes to bed early. Megan, our Medicaid coordinator touched base while I was on my evening walk and I think is genuinely looking out for dad’s best interest. It’s going to be a rough few weeks adjusting to the new place if past experience has anything to teach us. I’m completely emotionally exhausted, am super grateful for my kid’s help with the physical parts, and at a loss for yet another example of a broken system failing us. It shouldn’t be this way. Yet here we are, the hard day is over and we get a new day tomorrow hopefully with far fewer obstacles.

Today is January 439

Maybe I’m being a bit dramatic, but this month is just forever long. It’s still dark and it’s still cold, ALL. THE. TIME.

And it’s doing its number on me.

I had a bit of a breakdown earlier in the week with tears and ugly crying as a result of a podcast (amongst other recent soul work), jotted some things down and called my sponsor. I feel a lot better today, less anxious and more grounded.

I had enough clarity after all of that to finish getting the business registration paperwork filed. I have articles of incorporation and an EIN and I feel like I just summited one of many mountains on this next business journey. There’s been part of my brain that couldn’t fathom doing this work until I knew my dad’s situation was a little more solid (I’m STILL waiting on Medicaid to kick in here, 4 months and 3 attempts at applying later), it’s no wonder I’m adverse to any government agency/process. It’s all just so many broken systems one after the other. Perhaps the focus on my own thing was just what has been needed to ease my anxiety about the other thing. Let’s hope that proves to be the case.

I thought I’d have more profound things to say, but as the hard week unfolded news-wise my thoughts diminished. I’m just so sad that we are so sick a country that we STILL glorify guns and police abuse of power over actual human lives.

I’m powerless over these systems that are working exactly how they were designed. The part I can do is offer comfort and support to those who are suffering. I can keep being a voice of reason and hope. I can look around my tiny community and see more in common rather than other. And with that, I heal and hopefully that healing feeds into those whose lives intersect with ours.

Sunsets after 5pm also give me hope

The Unglamorous Trek from Survival to Sustainable

Less writing, more reading. Less outputs, more inputs. I go through seasons and years of these yin-yang opposites and for some reason am just putting it together that life generally has swings like that.

Right now I’m doing some very part time contract work that’s getting us out of survival mode. I work four days a week at two different places and that is good enough for now. I reserved Friday’s and weekends for appointments and family time and am grateful that I get the choice to do that. While I’m working one my jobs I get to listen to podcasts or audiobooks and am loving that auditory stimulation. While we were nomads I rarely was listening to anything besides our family conversations and nature. It was good for a long while, but eventually I found myself craving the alone time that listening to something on my own affords me. I didn’t have the bandwidth to be both fully engaged with nomad life and listen to other voices.

Zach got a new job! He starts working in Orem, Utah next week. And this job will ideally be shifting us from survival to sustainable. We haven’t made plans to move there yet and he’s going to rent a relatively affordable Airbnb for the first month, then we’ll assess from there. The kids and I will remain in Denver with our friend at least through February so I can keep working and as to not upset the stability we’ve built on since coming here in crisis mode in mid-November.

Since coming, we’ve all had Dr. visits, dental and orthodontist visits, mental health visits (and some still to come), and this taking care of myself first shift has been very healthy and, here’s that word again, sustainable. Thanks to Medicaid for making all this possible. I darkly joke that we were finally poor enough to afford these long put off visits. Yes, we had care in the past but since Zach worked for such a small company the out of pocket expenses were astronomical. The kids would get their yearly dr. visits for a copay but dental and braces was all out of pocket. Any emergencies required years of paying on hospital and medical bills since we’d never meet the very high deductible. Tell me why again we have insurance tied to employment? I have zero complaints about Medicaid and have been able to resume care with doctors who know us and have long established records of our past care.

Coming out of survival has made the mundane much more appealing to me. The yin-yang here is that yes, I like spontaneity, but I also crave structure (more than i realized). It’s a Both/and like so many things. I’ll take my free spirit flexibility in smaller doses if I can have a few more foundational needs met thank you very much. It’s less sexy but also far more stable for the long road ahead.

In the dry and dead there is also life teeming underneath the surface. I’m fallow for awhile so that whatever is lying deeper can patiently arise to the surface come spring.